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Associations & Organizations

Access to Disability Data: An InfoUse Project       http://www.infouse.com/disabilitydata

InfoUse has prepared this site for use in research on disability in the United States as a product of the Center on Access to Disability Data (NIDRR-funded). This site is based on information published in NIDRR Chartbooks released from 1996-1999

Key Topic(s) - Disability Research

American Association of People with Disabilities       http://www.aapd.com/

The American Association of People with Disabilities website focuses on leadership development, mentoring, policitical participation, advocacy and membership

Key Topic(s) - Outreach/Marketing

American Foundation for the Blind (AFB)       http://www.afb.org

The American Foundation for the Blind (ABF) website includes information, links, and publications in the areas of Accessibility, Public Policy, Events, Publishing, Research, and Consulting. AFB's Policy Research department produces and interprets valuable statistics about all nonmedical aspects of blindness and visual impairment in order to better understand the demographic characteristics of the visually impaired community. This department is one of the few think tanks dedicated to sorting through the maze of survey data collected by the U.S. Census Bureau and other national agencies. Reports include "The Social and Economic Status of Working-Age Adults (21-64) with Sensory Disabilities".   Transition of Youth with Visual Impairments, Multiple Impairments, or Deaf-Blindness: National Longitudinal Transition Study 2 Employment Statistics

Key Topic(s) - Employer Research, Disability Research

APSE       http://www.apse.org

Formerly the Association for Persons in Supported Employment, this website has some open features but is a membership only, which includes electronic access to the Journal of Vocational Rehabilitation and state chapters.

Center for Improving Research Evidence       http://www.mathematica-mpr.com/cire/

The Center for Improving Research Evidence (CIRE) provides training and assistance in designing, conducting, assessing, and using a range of scientific policy research and evaluations in worldwide settings for policymakers, philanthropies, practitioners, and others concerned with evidence-based decision making. CIRE develops and shares methods and standards for data collection, research, and evaluation, and applies these standards to assess the strength of existing evidence.

Key Topic(s) - Disability Research

Center for Studying Disability Policy       http://www.disabilitypolicyresearch.org/

The Center for Studying Disability Policy was established in 2007 by Mathematica to inform disability policy formation with rigorous, objective research and data collected from the people disability policy aims to serve.

Key Topic(s) - Disability Research

Chamber of Commerce for Individuals with DisAbilities (CCID)       http://www.chamber4us.org/

The Chamber of Commerce for Individuals with DisAbilities (CCID) is a national consumer volunteer organization that uses business principles to improve the economic status of individuals with disabilities, who are disadvantaged, or who are unemployed.

Key Topic(s) - Employer Research, Outreach/Marketing

Cornell University: Employment and Disability Institute       http://www.ilr.cornell.edu/edi

The main page includes links to Disability Benefits and Work, Disability Statistics Research, as well as current publications and policy briefs. One of the stronger academic websites for disability research!

Key Topic(s) - Disability Research

Disability Research Institute       http://www.ric.org/research/outcomes/social_security.php

The Disability Research Institute is a cooperative project between the U.S. Social Security Administration and the University of Illinois, Urbana-Champaign. The central purpose of the DRI is to conduct research and evaluations, disseminate information on disability topics, and inform policymakers and the public in understanding policies as they relate to people with disabilities and programs under the Social Security Act. Current research projects include "The Business of Employing People with Disabilities: Four Case Studies".

Key Topic(s) - Employer Research, Disability Research

EconPapers       http://econpapers.repec.org/

A quick search brings up 100 papers on work-related disability. An example is the Michigan Disability Prevention Study on the impact of various employer policies and practices on the prevention and management of workplace disability.

Key Topic(s) - Employer Research, Disability Research

GAO       http://www.gpoaccess.gov/

From time to time the Government Accountability Office (GAO) produces reports on work and disability issues.

Key Topic(s) - Disability Research

InfoUse: Access to Disability Data       http://www.infouse.com/disabilitydata/home/index.php

The InfoUse website has been designed for use in research on disability in the United States, as a product of the Center on Access to Disability Data, a project funded by the National Institute on Disability and Rehabilitation Research (NIDRR). The website provides access to four major reports/chartbooks, including one on Work and Disability.

Key Topic(s) - Disability Research

Interagency Committee on Disability Research       http://www.icdr.us

The Interagency Committee on Disability Research is a portal that facilitates exchange of information on disability and rehabilitation activities. The website promotes the latest disability statistical reports and current research in progress.

Key Topic(s) - Disability Research

Job Accommodation Network - DOL       http://www.jan.wvu.edu/

The Job Accommodation Network is a service from the Office of Disability Employment Policy at the US Dept of Labor. Of particular interest is the portal (on the left) for State and Local Government Employers. Their own website (http://www.dol.gov/odep/) provides additional information.

Key Topic(s) - Employer Research

National Academy of Social Insurance       http://www.nasi.org/

The National Academy of Social Insurance is a nonprofit, nonpartisan organization made up of the nation's leading experts on social insurance. Its mission is to promote understanding and informed policymaking on social insurance and related programs through research, public education, training, and the open exchange of ideas. Key areas of interest include Medicare, Social Security, and Unemployment Insurance; publications include working papers on employment and disability.

Key Topic(s) - Employer Research, Disability Research

National Association of State Medicaid Directors        http://www.nasmd.org

This website provides legislative information and text related to Medicaid regulations, waivers, and updates. Some of the reports and publications that are posted on this website may be useful to researchers. Part D information

Key Topic(s) - Medicare Part D, Disability Research

National Business and Disability Council       http://www.business-disability.com

The National Business and Disability Council is a leading resource for employers seeking to integrate people with disabilities into the workplace and companies seeking to reach them in the consumer marketplace. Its Emerging Leaders program places college students with disabilities in summer internship programs.

Key Topic(s) - Employer Research, Outreach/Marketing

National Center for the Dissemination of Disability Research (NCDDR)       http://www.ncddr.org/

The Southwest Educational Development Laboratory (SEDL) operates the National Center for the Dissemination of Disability Research (NCDDR) through funding from the National Institute on Disability and Rehabilitation Research (NIDRR). NCDDR'S work will focus on developing systems for applying rigorous standards of evidence in describing, assessing, and disseminating outcomes from research sponsored by NIDRR. Significant features of the NCDDR site includes development of a Standards and Research Review Board to develop standards of evidence for NIDRR-sponsored research, and creation of registries of NIDRR-sponsored research and of evidence-based reviews addressing disability and rehabilitation research.

Key Topic(s) - Disability Research

National Collaborative on Workforce and Disability for Youth       http://www.ncwd-youth.info/

The National Collaborative on Workforce and Disability for Youth (NCWD/Youth) assists state and local workforce development systems to better serve all youth, including youth with disabilities and other vulnerable youth. The NCWD/Youth, created in 2001, is composed of partners with expertise in education, youth development, disability, employment, workforce development and family issues. Funded by a grant from the U.S. Department of Labor's Office of Disability Employment Policy (ODEP), the NCWD/Youth is housed at the Institute for Educational Leadership in Washington, D.C. NCWD/Youth offers a range of technical assistance services to state and local workforce investment boards, youth councils and other workforce development system youth programs.

Key Topic(s) - Youth in Transition

National Council on Disability       http://www.ncd.gov/

The National Council on Disability (NCD) is an independent federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families. NCD's overall purpose is to promote policies, programs, practices, and procedures that guarantee equal opportunity for all individuals with disabilities; and to empower individuals with disabilities to achieve economic self-sufficiency, independent living, and inclusion and integration into all aspects of society. NCD is currently working on a series of reports known as Investing in Independence, which focus on transitioning people from Social Security income to work, long term supports and services, the impact of the Americans with Disabilities Act, and financial incentives related to employment and living independently.

Key Topic(s) - Benefits Counseling, Disability Research

National Dissemination Center for Children with Disabilities (NICHY)       http://www.nichcy.org

The dissemination center is funded by the U.S. Department of Education, OSEP, and serves as a central source of information on IDEA, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.

Key Topic(s) - Disability Research

National Organization on Disability       http://www.nod.org

The National Organization on Disability (N.O.D.) works to expand the participation and contribution of America’s men, women and children with disabilities in all aspects of life. Relevant features of their website include information on the National EmployAbility Partnership and Economic Participation, which provides employment and technology resources of value to job seekers, potential employers, and those interested in marketing to the disability community.

Key Topic(s) - Employer Research, Outreach/Marketing

National Technical Assistance and Research Center to Promote Leadership for Increasing Employment and Economic Independence of A       http://www.ntarcenter.org/

The National Technical Assistance and Research Center to Promote Leadership for Increasing Employment and Economic Independence of Adults with Disabilities (NTAR Leadership Center) is a collaboration of partners with expertise in workforce development, disability employment, economic development, financial education, benefits planning, and leadership development.  Established in September 2007 through a grant from the US Department of Labor’s Office of Disability Employment Policy (ODEP), the NTAR Leadership Center is housed at the John J. Heldrich Center for Workforce Development at Rutgers, The State University of New Jersey.

Key Topic(s) - Disability Research

Project Summer       http://www.projectsummer.info/Project_Summer/Welcome.html

The purpose of this project is to identify the skills, experiences, supports, and connections that youth with disabilities need—both during the school year and summer months—to transition successfully into adulthood. Throughout this three-year development project, we will collaborate with schools, communities, and families to discover how best to deliver transition services. In the end, we hope to refine and evaluate an intervention approach that makes a real difference in young people’s lives.

Key Topic(s) - Youth in Transition State(s) - Wisconsin

RAND Corporation       http://www.rand.org/pubs/

The RAND Corporation is a nonprofit institution that helps improve policy and decisionmaking through research and analysis. Their publications list includes a range of work disability issues.

Key Topic(s) - Disability Research

Rehabilitation Research and Training Center on Aging with a Disability       http://agerrtc.washington.edu/

The Rehabilitation Research and Training Center investigates the impact of aging on people with a disability, and examines issues such as health changes, psychological reactions, family needs, and job accommodation.  The center specializes in new research on aging with disability and providing training to physicians, direct service professionals, and consumers.  Job accommodation research is one additional focus.

Key Topic(s) - Employer Research, Personal Assistive Services (PAS), Disability Research

Research Information for Independent Living       http://www.getriil.org/

Research Information for Independent Living (RIIL), a RTC/IL at the University of Kansas and (ILRU) project, was developed with a NIDRR grant. The site contains links to research briefs and disability statistics on employment, benefits, and PAS.

Key Topic(s) - Personal Assistive Services (PAS), Disability Research

San Diego University: Interwork Institute        http://interwork.sdsu.edu/research.html

San Diego University sponsors this Interwork Institute website, which includes research projects and resources which focus on disability websites, rehabilitation counseling services and job assistance.

Key Topic(s) - Outreach/Marketing, Disability Research

SUNY at Buffalo: Cornucopia of Disability Information        http://codi.buffalo.edu

Cornucopia of Disability Information is the main page of the University at Buffalo (SUNY), School of Public Health and Health Professions’ website. It consists of both an Internet Directory of Disability Information and a repository of electronic disability documents, dating back to the early 1990s. There are links to disability statistics, employment, government documents, and disability directories.

Key Topic(s) - Disability Research

Syracuse University: Center on Human Policy, Law, and Disability Studies (CHPLDS)        http://disabilitystudies.syr.edu/

The Disability Studies site includes lists of: Syracuse University publications, research endeavors, academic programs, links to other disability resources.

Key Topic(s) - Disability Research

Temple University: Institute on Disabilities        http://www.disabilities.temple.edu/index.htm

The Institute on Disabilities promotes, conducts, and disseminates constituency-oriented, collaborative research and evaluation inclusive of people from diverse cultures as collaborators and participants in research and evaluation process.

Key Topic(s) - Disability Research

The National Center on Physical Activity and Disability       http://www.ncpad.org/

NCPAD is an information center concerned with physical activity and disability. The mission of the National Center on Physical Activity and Disability (NCPAD) is to promote substantial health benefits that can be gained from participating in regular physical activity. This site provides information and resources that can enable people with disabilities to become as physically active as they choose to be.

Key Topic(s) - Disability Research

UCSF: Center for Personal Assistance Services        http://www.pascenter.org/home/index.php

The Center for Personal Assistance Services provides research, training, dissemination and technical assistance on issues of personal assistance services (PAS) in the United States: The relationship between formal and informal PAS and caregiving support, and the role of assistive technology (AT) in complementing PAS; Policies and programs, barriers and new models for PAS in the home and community; PAS Workforce development, recruitment, retention, and benefits; and Workplace models of formal and informal PAS and AT work.

Key Topic(s) - Personal Assistive Services (PAS)

UCSF: Disability Statistics Center        http://dsc.ucsf.edu/main.php

The Disability Statistics Center at the University of California at San Francisco produces and disseminates policy-relevant statistical information on the demographics and status of people with disabilities in American society. The Center is based at the Institute for Health and Aging at the University of California, San Francisco (UCSF). It receives funding from the National Institute on Disability and Rehabilitation Research (NIDRR).

Key Topic(s) - Disability Research

University of Hawaii: Center on Disability Studies        http://www.cds.hawaii.edu/main/activities/research/

The Center on Disability Studies (CDS) is a University of Hawai‘i Board of Regents recognized Center focused upon development and conduct of interdisciplinary education/training, research/demonstration and evaluation, and university and community service. The CDS is also is home to the Review of Disability Studies journal. One of their five initiative areas is Transition, Postsecondary Education, and Employment. http://manoa.hawaii.edu/livehealthy/ http://www.fipse.hawaii.edu/

Key Topic(s) - Youth in Transition, Demonstration to Maintain Independence and Employment (DMIE), Disability Research

University of Illinois at Champaign-Urbana: Disability Research Institute       http://dri.uiuc.edu

The Disability Research Institute of the University of Illinois (Champaign-Urbana) provides access to studies on work disability. It also has an extensive annotated section on Research Resources (http://dri.uiuc.edu/links.htm) that is well organized and comprehensive.

Key Topic(s) - Youth in Transition, Disability Research

University of Minnesota: Research and Training Center on Community Living        http://rtc.umn.edu/main/

The Research and Training Center on Community Living provides research, evaluation, training, technical assistance and dissemination to support the aspirations of persons with developmental disabilities to live full, productive and integrated lives in their communities. http://rtc.umn.edu/statistics/ A major activity of the RTC is to analyze various data sets to learn about the status and characteristics of individuals with disabilities in the United States.

Key Topic(s) - Youth in Transition, Disability Research

University of Montana: Research and Training Center on Disability in Rural Communities        http://rtc.ruralinstitute.umt.edu/

The U.S. Department of Education funds the Research and Training Center on Disability in Rural Communities to explore issues important to the 12.5 million rural Americans with disabilities and develop solutions to the problems they encounter in accessing telecommunications, becoming effective self-advocates and community leaders, and in living independent, healthy lives. The site includes links to demographic data and publications, including Progress Report #8: part of the first National Study of People with Disabilities Who are Self-Employed.

Key Topic(s) - Disability Research

Urban Institute       http://www.urban.org

Urban Institute has produced a number of reports on return-to-work issues for the disabled.

Key Topic(s) - Disability Research

VCU: Rehabilitation Research and Training Center on Workplace Supports and Job Retention        http://www.worksupport.com/

The Rehabilitation Research and Training Center, supported by the Virginia Commonwealth University, focuses on assisting individuals with disabilities maintain employment and advance their careers. The emphasis is on those who are unemployed, underemployed or at risk of losing employment.

Key Topic(s) - Benefits Counseling, Employer Research, Disability Research

W.E. Upjohn Institute for Employment Research       http://www.upjohninst.org/dishub.html

The Upjohn Institute Research Division analyzes the dynamics of the labor market and conducts evaluations of employment programs around the world; its interest in social insurance includes the nation's disability programs and workers' compensation insurance. Areas of particular interest on the website include a Research Hub of Disability & Workers' Comp, as well as an Employment Research Data Center.

Key Topic(s) - Disability Research, Employer Research

WUMC: Rehabilitation Research and Training Center on Substance Abuse, Disability, and Employment        http://www.med.wright.edu/citar/sardi/rrtc_about.html

In 2006, the National Institute on Disability and Rehabilitation Research (NIDRR) funded the Rehabilitation Research and Training Center (RRTC) on Substance Abuse, Disability, and Employment at the Wright University Medical School, which addresses employment issues among persons with disabilities and co-existing substance use disorders.

Key Topic(s) - Employer Research, Outreach/Marketing