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Reference Materials

Acronyms and Glossary       http://www.mig-rats.org/Toolkit.aspx?ID=6

This is a list of commonly used acronyms with definitions.  You will be re-directed to the toolkit section of this website.

CDC: Center for Health Statistics       http://www.cdc.gov/nchs/

The Centers for Disease Control's National Center for Health Statistics', a rich source of information about America’s health. As the Nation’s principal health statistics agency, they compile statistical information to guide actions and policies to improve public health.   CDC Fast Stats A to Z:  Work-Related Injury/Occupational Injury section.   The National Health Interview Survey (NHIS) is sponsored by the National Center for Health Statistics (NCHS). The survey is a nationally representative sample of the resident civilian, non-institutionalized U.S. population, both children and adults. It does not include residents of long-term care facilities, persons on active duty with the Armed Forces (though their dependents are included); or U.S. nationals living in foreign countries. The NHIS has been conducted annually since 1957. Sampling and interviewing are done continuously throughout the year.   Series 10 reports include annual basic survey estimates for various population subgroups, including those defined by age, gender, race, family income, and other variables. Separate reports are issue for the U.S. population, the adult population, and children.   The National Health Interview Survey on Disability (NHIS-D) was sponsored by the National Center for Health Statistics (NCHS). Unlike the annual NHIS, the NHIS-D was conducted only once beginning in 1994, in two phases. The Phase 1 Disability questionnaire was administered to respondents as a supplement to the regular annual NHIS (the "core") in 1994-5. It elicited information on disability for members of each household surveyed, and was used a screening device for Phase 2, the "Disability Followback Survey" (DFS). The DFS was administered to people who were identified as having disabilities through the Phase 1 NHIS-D and also by their responses to disability-related questions in the core NHIS. Phase II was conducted several months after the core NHIS and Phase 1 interviews and lasted from 1994 through 1997.

Cornell University - Disability Statistics       http://www.DisabilityStatistics.org

Cornell University, School of Industrial and Labor Relations. This website is a treasure trove of statistics and rigorous data and information on disability.

Key Topic(s) - Disability Research

DisabilityInfo.gov       http://www.disabilityinfo.gov

DisabilityInfo.gov is the federal government's one-stop Web site portal for people with disabilities, their families, employers, and many others. Several areas may be of particular interest, including:  (1) Employment/Research & Stats ; (2) Health/Research & Stats ; (3) Benefits/Work Incentive Programs ; (4) Employment/Work Incentive Programs.

Key Topic(s) - Benefits Counseling, Employer Research, Personal Assistive Services (PAS), Youth in Transition, Disability Research

Interagency Committee on Disability Research       http://www.icdr.us/

The Interagency Committee on Disability Research (ICDR) facilitates the effective exchange of information on disability and rehabilitation research activities among its 70-plus member agencies. We coordinate activities that span the areas of assistive technology and universal design; medical rehabilitation; data and statistics; employment; and community participation.

Key Topic(s) - Personal Assistive Services (PAS), Disability Research

Interagency Committee on Disability Research       http://www.icdr.us

The Interagency Committee on Disability Research is a portal that facilitates exchange of information on disability and rehabilitation activities. The website promotes the latest disability statistical reports and current research in progress.

Key Topic(s) - Disability Research

Naitonal Beneficiary Survey Round 2: Public Use File Codebook       http://www.mathematica-mpr.com/publications/redirect_PubsDB.asp?strSite=PDFs/disability/NBS_rnd2_codebk.pdf

This codebook describes the content and format of the Public Use Representative Beneficiary data file from round 2 of the National Beneficiary Survey (NBS). The NBS, a component of the Social Security Administration’s evaluation of the Ticket to Work and Self-Sufficiency program, collected data from a national sample of Social Security Disability Insurance and Supplemental Security Income beneficiaries, as well as a sample of Ticket to Work participants.   Codebooks for rounds 1 and 3 are also available.

Key Topic(s) - Disability Research

National Beneficiary Survey Round 1: Public Use File Codebook       http://www.mathematica-mpr.com/publications/PDFs/disability/NBS_rnd1_codebk.pdf

This codebook describes the content and format of the Public Use Representative Beneficiary data file from round 1 of the National Beneficiary Survey (NBS). The NBS, a component of the Social Security Administration’s evaluation of the Ticket to Work and Self-Sufficiency program, collected data from a national sample of Social Security Disability Insurance and Supplemental Security Income beneficiaries, as well as a sample of Ticket to Work participants.   Codebooks for rounds 2 and 3 are also available.

Key Topic(s) - Disability Research

National Beneficiary Survey Round 3: Public Use File Codebook       http://www.mathematica-mpr.com/publications/PDFs/disability/NBS_rnd3_codebk.pdf

This codebook describes the content and format of the Public Use Representative Beneficiary data file from round 3 of the National Beneficiary Survey (NBS). The NBS, a component of the Social Security Administration’s evaluation of the Ticket to Work and Self-Sufficiency program, collected data from a national sample of Social Security Disability Insurance and Supplemental Security Income beneficiaries, as well as a sample of Ticket to Work participants.   Codebooks for rounds 1 and 2 are also available.

Key Topic(s) - Disability Research

National Post-School Outcomes Center       http://www.psocenter.org/

The National Post-School Outcomes Center aims to help state education agencies establish practical and rigorous data collection systems that will measure and profile the post-school experiences of youth with disabilities. The results will be used for national, state, and local reporting and-most importantly-to guide and improve transition services to this population.

Key Topic(s) - Youth in Transition

North American Collaborating Center (NACC) on the International Classification of Functioning, Disability and Health (ICF).       http://www.cdc.gov/nchs/about/otheract/icd9/nacc.htm

The NACC is located at the NCHS and works in close collaboration with the Canadian Institute for Health Information (CIHI) and Statistics Canada. NACC maintains liaison with WHO on implementation and maintenance of the set of International Classifications.

ResDAC - University of Minnesota        http://www.resdac.umn.edu/medicaid

This website includes technical references for Medicare and Medicaid datasets including data element dictionaries and public-use files. It’s not designed for quick lookups. Data geeks are welcome!!!

Key Topic(s) - Disability Research

Return on Investment Calculator: A Tool for Analyzing State Investment in Direct Care Worker Wages       http://www.ptpllc.com/clients/phi/roi/

The Return on Investment calculator allows states (and the District of Columbia) to analyze the economic and social impact of additional investment in the wages of direct-care staff working in their personal care services programs. Designed to incorporate a wide range of factors -- including the size of a proposed wage increase, staff turnover costs and retention rates, and issues related to implementation design -- the on-line calculator provides state policymakers with an easy-to-use tool for identifying the real costs and benefits of a wage increase. This information should help states to identify how to most effectively allocate resources in their efforts to stabilize their direct-care workforce and, thereby, strengthen their personal care service infrastructure.

Key Topic(s) - Personal Assistive Services (PAS)

Society for Disability Studies (University of Illinois at Chicago)       http://www.uic.edu/orgs/sds/links.html

The Department of Disability and Human Development at the University of Illinois at Chicago has a useful link of general resources as part of their Society for Disability Studies website.

SSA 2009 Red Book       http://www.ssa.gov/redbook/index.html

This useful reference site from SSA provides a basic text overview of the SSI and SSDI programs, eligbility rules, work incentives, and definitions.

SSA's Program Evaluation Manual       https://s044a90.ssa.gov/apps10/poms.nsf/partlist!OpenView

Here is the full SSA program evaluation manual, when you need a very specific question answered. Be sure to roll up your sleeves!

SUNY at Buffalo: Cornucopia of Disability Information        http://codi.buffalo.edu

Cornucopia of Disability Information is the main page of the University at Buffalo (SUNY), School of Public Health and Health Professions’ website. It consists of both an Internet Directory of Disability Information and a repository of electronic disability documents, dating back to the early 1990s. There are links to disability statistics, employment, government documents, and disability directories.

Key Topic(s) - Disability Research

Surveying Persons with Disabilities: A Source Guide, Version II       http://www.mathematica-mpr.com/publications/pdfs/surveypersons_ver2.pdf

This newly updated guide provides an easily accessible source of research on the methodological issues associated with surveying persons with disabilities. Mathematica prepared the first version of the guide in 2006. This updated version has 75 new abstracts and reference citations—more than half dating from 2004 or later. All references—dating from 1974 to 2007—are from multiple and diverse sources, including online journal articles and social science resources; conference presentations, papers, and summaries; citations from articles and books; federal websites; internet search engines; and working papers and dissertations

Key Topic(s) - Disability Research

World Health Organization - International Classification of Functioning, Disability, and Health.       http://www3.who.int/icf/icftemplate.cfm

This site does not include disability data, but provides extensive information on WHO's current system for classifying disability. The system is noteworthy for its recognition of disability as an interaction process between the person and his or her environment.